Fundraiser to help Kinsley White's family with medical costs
At 16, Kinsley White has probably been examined by enough doctors to last her a lifetime.
General practitioners. Neurologists. Neurosurgeons. Cardiologists. Doctors who routinely diagnose diseases and disorders she can’t even pronounce.
Next month, though, the Thomasville teenager will see yet another team of doctors — at the esteemed Mayo Clinic in Rochester, Minn. — and this time she’s actually looking forward to it, because she hopes to get some definitive answers about the neurological disorder she’s been battling for the past two years.
“They’re going to start from scratch — tests, MRIs, everything — and then go back and compare that to results she’s had before,” said Kinsley’s mother, Tracy White. “At this point, we think that’s what she needs.”
Since 2011, Kinsley has experienced episodes of passing out several times a day, sometimes for as long as half an hour at a time before finally coming to again. Her body jerks during the episode, until she regains consciousness gasping for breath.
“When she finally wakes up, she is exhausted and in pain with her head and chest, as well as her body aching from the muscles being pulled from her jerking,” Tracy said.
“Watching her, it is like her body is having a very bad seizure, but they have ruled out epilepsy. When she has these episodes, she is left with no energy and has to stay in bed for at least a day.”
Doctors have diagnosed several disorders: Neurocardiogenic syncope. Vasovagal syncope. Orthostatic intolerance. Posterial orthostatic tachycardia syndrome. Chiari malformation.
The latest diagnosis — Chiari malformation — is a structural defect in which part of the brain descends too low through an opening at the rear of the skull, resulting in a wide variety of neurological symptoms.
“We’ve been to specialists, and some of them say she needs surgery tomorrow, and others say it’s not that bad,” Tracy said. “But her condition continues to get worse.”
Kinsley’s body has grown weaker, and she can no longer be left alone for fear that she’ll fall and injure herself. When she’s able to leave the house, it’s in a wheelchair.
That’s why the Whites are so hopeful about their upcoming visit at the Mayo Clinic. Kinsley and her parents, Tracy and Scott, will be at the medical facility for six days of exhaustive testing.
Meanwhile, the community has rallied around the White family — providing meals, staying with Kinsley so her parents can continue working, and making financial contributions. This weekend, an all-day fundraiser will be held at Fat Mac’s Pork Schop to help with the family’s medical expenses.
“That has been the most difficult thing for our family — we are learning to accept help from others and to ask for help,” Tracy said. “We are so blessed.”
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Want to go?
A fundraiser to benefit the family of Kinsley White will take place all day Saturday at Fat Mac’s Pork Schop, 1807 N. Main St.
Events will kick off with breakfast at 9:30 a.m., followed by a motorcycle ride that will begin around 11 a.m.; cornhole tournaments beginning at 1 and 5 p.m.; and a concert featuring The Invaders from 5 to 9 p.m.
There will also be raffles and a silent auction.
Entry fees for the cornhole tournaments are $10 per person for the first one, $30 per team (or $15 per individual) for the second one. The cost for participating in the motorcycle ride is $15.
Proceeds will go to Kinsley’s family to help pay medical expenses.
For more information, call Fat Mac’s at 889-7447.